Patient Information Collection Statement and Consent
Insmed Incorporated, 10 Finderne Ave, Bridgewater, New Jersey 08807 (Insmed, we, us, our, and similar expressions) is a medical research company dedicated to transforming the lives of patients battling serious rare diseases. We are developing novel, targeted therapies to help serve the critical unmet needs of these patients. In concert with developing therapeutic solutions, we are committed to improving the entire patient experience, from diagnosis and treatment to everyday living.
Insmed collects personal information from you directly. We collect, store, use and disclose your personal information such as your name, contact details and age range. We do this so that we can provide you with our services (including in relation to your participation in a clinical trial), identify you as our customer, improve our service offerings, or otherwise notify you of information we believe may be of interest to you. With your consent, Insmed will also collect information you provide to us about your health in relation to the clinical trial, including to assess your eligibility. We also collect technical information through our website.
If you do not provide us with the personal information we request, then we may be unable to provide you with our products and services, including that you may be unable to participate in the clinical trial.
If you are applying to participate in a clinical trial, and the information you provide indicates that you are eligible to participate, then we will also share your personal information with your chosen Study Centre (as specified on the relevant website for the trial) for the purposes of enrolling you in, and monitoring your participation in, the trial.
- explains how you may seek access to, or correct, the personal information which we hold about you; and
- contains information about how you can complain if you believe we have breached our obligations under applicable privacy legislation, and how we will deal with such a complaint.
By clicking “I accept”, I acknowledge that the following statements are true:
(b) Although consent to this notice does not enrol me into a clinical trial, I understand that my potential participation in a clinical trial is voluntary and I can amend or withdraw my consent at any time, however this may mean I can no longer participate in the relevant clinical trial; and
You need to accept the Patient Information Collection Statement to proceed.